There are no words. Less than 2 weeks after this all began and less than a week since Lyza asked everyone to fast for our little Echo and so many miracles have happened! Thank you so much to each of you who dropped to your knees & answered our plea for immediate help. Today Echo met a key milestone as she was taken off all oxygen, tried to take a bottle and was transferred out of the PICU! Our hearts are so full of gratitude for all the prayers offered on her behalf and for a loving Heavenly Father who had mercy on our little warrior. She still has some mountains to climb but she’s stronger from the battle and we feel like her chances are looking pretty good. Chris & Lyza are also grateful for those who have donated to help with expenses. They have been humbled by your generosity.
So, update for this morning. Echo has been running a low grade fever and seems a little more uncomfortable so they are talking about doing another perecentesis (draining the fluid out of her abdomen manually) they want to culture it to see if she has infection. They have already started her on another antibiotic just in case and got blood and urine cultures just in case the suspected infection is somewhere else. X-ray was normal, but ultrasound showed new pockets of fluid, which they were thinking is possibly where the infection is. All the liver labs are still trending down, but her CRP (general inflamation lab) did increase, which also shows possible infection. Other than that, there is nothing significant to report.
Echo had her follow up appt with the eye dr. They need to watch closely for side effects from the viral meningitis. She passed w/flying colors & doesn’t need to go back for 6 months. She is also doing well to take all of her feedings by bottle so she got her NG tube out yesterday. Good things happening! Guess we should add that she has 4 cousins that adore her.
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